A Canadian family of six is embarking on a world tour to create memories before three of their four children lose sight due to retinitis pigmentosa, a degenerative disorder that is incurable.
Edith Lemay and Sebastien Pelletier, who live in Quebec, decided to embark on world tour after three of their four children were diagnosed with retinitis pigmentosa, which will make them lose their vision totally in their 30s.
The family started a year-long world tour in March and has so far visited Namibia, Zambia, Tanzania, Mongolia, Turkey and Indonesia with their three children suffering from the disease, 12-year-old Mia, 7-year-old Colin, 5-year-old Laurent, and Leo, their fourth child.
While talking about why they embarked on the tour, the Canadian parent (Lemar and Pelletier) said: “The doctors suggested that we increase the visual memories of our children as much as possible. We wanted our children to see the world in person, not through photographs.
“For this, the best thing was to go on a world tour.”
The family originally wanted to commence the world tour with a trip between Russia and China in 2020, but they could not commence the tour owing to the pandemic.
Retinis pigmentosa is an uncommon genetic disease where cells in the retina begin to break down. Normally, its symptoms first appear during childhood with vision problems at night.
According to research, some people who have it become “almost blind” in their 30s. Currently, there is no cure for the disease, but specialists say using assistive and educational programs to ameliorate vision could help.
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